Helping Unite Americans with Ataxia
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I FEEL THE NEED TO TELL JUST MY STORY, BUT OUR STORY ABOUT ATAXIA. I ALSO HAVE GUILLAIN-BARRE' SYNDROME, TOO. SO I GOT FIGHTING MAD AND CALLED LOCAL TV/NEWSPAPERS. AND I GOT AN INTERVIEW TODAY!! WITH KTEV/ABC AFFILIATE. BUT, I WANT TO KNOW HOW DO YOU GET THE WORD OUT??? THIS IS NOT MY OWN GAD ATAXIA, WHICH THE REPORTER FOUND IT IS RARE...BUT TO TELL PEOPLE. I AM NT AND NEITHER THAN ANY OF US ARE LIKE MICHAEL J. FOX REGARDING PARKINSON'S...BUT WE HAVE SOMETHING!! ANY…Continue
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Posted by Beryl Park on September 28, 2013
Added by John "JC" Colyer on December 7, 2013
Added by Michael"Bones"Jones on December 10, 2013
Posted by PG on December 4, 2013
Added by John "JC" Colyer on August 14, 2012