"I don't know how to twitter. I don't even text.
I have a cell phone, but only make phone calls. I'm not familiar with all the capabilities."
American Ataxia Networking
Helping Unite Americans with Ataxia
Latest Activity
"Great! I think it's a habbit people get into, but once they know how really bad it is for us to injest that crap then they think twice about putting that stuff in their mouth. Your right it is poison! I totally agree!"
John "JC" Colyer replied to John "JC" Colyer's discussion Twitter Chat"We will be posting tutorial video's to help with twitter, we are planning multiple chats at different for different time zones, an update will be soon"
John "JC" Colyer replied to John "JC" Colyer's discussion Twitter Chat"When you join you post questions and put #bensfriends at end of post and it will show up on www.tweetchat.com ; when you join chat "
John "JC" Colyer posted a discussionTwitter Chat
Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of our amazing communities. Here are the questions we are thinking about using for the first chat:1) How did you find BF?2) How has Ben's Friends and social media improved your life?3) What rare disease do you have?4) how long did it take for u get the…See More
John "JC" Colyer commented on John "JC" Colyer's group Affirmations and Quotes"If it fails, admit it frankly and try another. But above all, try something.
—
Franklin D. Roosevelt
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"whattup buddy? enjoyin that California weather? get @ a brotha sometime."
"hey mary, I miss u. happy birthday darlin. get at me real soon."
Michael Ward commented on Julie Hahn's group Gluten Ataxia"My wife and I eat a strict diet together.
Process Foods are not in our home.
Keep Poison Away from your mouth!"
Michael Ward left a comment for missy stowe"Good to hear some good news!
Wish you the best.
Let hang in there and support one another!
Kind regards,
michael"
"I so agree with you there! I stoped eating anything processed and have seen a real diffrence with my Ataxia! L0)"
Blog Posts
suggestions
Posted by missy stowe on May 10, 2012 at 6:52am 6 Comments 0 Likes
i just hd gallbldder surgery n i kno to stay aywy frm fats but really dont kno anything else about to eat n wut not to cn anyone hlp me?
Share Your NCredible Health Hustle with Nick Cannon
Posted by Armando Abrero on May 4, 2012 at 8:25am 0 Comments 0 Likes
Would you like to share the challenges you face while dealing with a rare disease? Artist and TV personality Nick Cannon would like to hear about it.
Sign up on the link below and share your story.
http://www.nickcannon.com/post/share-your-ncredible-health-hustle
Mention your illness and how this community has helped you cope with it.
Ataxia still bites
Posted by Troy Kimble on May 4, 2012 at 7:32am 1 Comment 0 Likes
Hey all,
I haven't posted in a while. I quit working at the end of October last year and took short and long term disability and have managed to keep up because of it. I filed for SSDI at the same time I quit working and finally got the approval letter just yesterday after some hassle. (thanks to Alsup and finally getting the VA to clear up my case). I have been going to PT at the VA for a few weeks now and it has been good for me. I'm using a Rollator part time now and it…
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Dilbert Comics again!
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Walking With Ataxia
When it comes to our movement problems we're really not that "special" or different than anybody else.
send your requests for the 2011 Ataxia Tour schedule?
Top Content
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suggestionsAdded by missy stowe on May 10, 2012 |
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Disablility..................Posted by Jeannie on February 9, 2012 |
| 3 |
Twitter ChatPosted by John "JC" Colyer on May 18, 2012 |
| 4 |
In My World it is hard to get people to see who I am past my wheelchair. It is hard to have real, meaningful relationships with boys. It is hard getting around on my own and I can’t do some of the thiAdded by Sydney Yocum on May 15, 2012 |
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IPhone photo's 035Added by Jeannie on March 22, 2011 |
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Twitter Chat
Started by John "JC" Colyer in Sample Title. Last reply by Jerry 2 hours ago. 3 Replies 0 Likes
Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of…Continue
PHaving problems using something on this site
Started by Jeannie in Sample Title on Monday. 0 Replies 0 Likes
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What would you do to comfort a sick friend?
Started by Armando Abrero in Sample Title May 8. 0 Replies 0 Likes
"What would you do to comfort a sick friend?"Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestions, especially from patients, as you would know from your end what cheers up a sick person.A sort of what would…Continue
Stem Cell Rescarch is underway:
Started by Michael Ward in Sample Title Apr 30. 0 Replies 0 Likes
Clinical trials on the use of stem cells are underway for a wide variety of conditions and there is an emphasis on the use of bone marrow, hematopoietic (mobilized and recovered in blood and umbilical cord blood) and mesenchymal stem cells. While…Continue
Anyone get dizzy?
Started by Jeannie in Sample Title. Last reply by Corrinne (Corkey) Dalke Apr 30. 6 Replies 0 Likes
Today I am really light headed! I can't figure out if it's an allergy or my ataxia or what's going on wigh me today!I've never had allergies before! My head is spinning, if I move my head or eyes! All I seem to be able to do is lay in bed today! !…Continue
COUGHING: Does anybody Else having Coughing issues with ATAXIA?
Started by Michael Ward in Sample Title. Last reply by Michael Ward May 6. 4 Replies 0 Likes
Since I was "30" I would cough for no apparent reason?This was the start of Ataxia.At 45 it started effecting other parts of me.At 53 I have Ataxia at a higher degree.Back to coughing:For years I heard specialist say it might be this or it might be…Continue
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metro CAASG meeting
June 24, 2012 from 1pm to 3:30pm – Ravenrswood Chiropractic & Wellness Center
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